IRB Pre-Approved Publicly Available, De-Identified Data Sources

The use of data from the following list of IRB approved public data sets is not considered human subject research as long as the following two criteria are met:

  • Research will NOT involve merging any of the data sets in such a way that individuals might be identified
  • Researcher will NOT enhance the public data set with identifiable, or potentially identifiable data

Agency for Healthcare Research and Quality

National Medical Expenditure Panel Survey

Healthcare Cost and Utilization Project (healthcare databases)

American National Election Studies

National Election Studies

Centers for Disease Control and Prevention

Behavioral Risk Factor Surveillance System (public data only)

Inter-University Consortium for Political and Social Research

ICPSR Archives and Projects (click link to search for archived datasets)

Radcliffe Institute for Advanced Study

Murray Research Center

MIT Lab for Computational Physiology

MIMIC-III critical care database

National Cancer Institute

SEER Data, 1973-2011

National Center for Health Statistics

National Health Care Surveys

National Health Interview Survey

National Survey of Children with Special Health Care Needs

National Health and Nutrition Examination Survey

National Epidemiologic Survey on Alcohol and Related Conditions (NESARC)

Wave 1 (2001–2002), and Wave 2 (2004–2005)

National Highway Traffic Safety Administration (NHTSA)

Motor Vehicle Occupant Safety Survey

National Institute on Aging, National Institutes of Health

Database of Longitudinal Studies

Virtual Repository of Human Biospecimen

National Institute of Child Health and Human Development

NICHD Study of Early Child Care and Youth Development (SECCYD) Public Use Datasets

National Institute of Justice Data Resources Program

National Archive of Criminal Justice Data

National Opinion Research Center

General Social Survey

International Social Survey

National Science Foundation

Science Resources Studies

Pennsylvania State University, Department of Sociology

American Religion Data Archive

PhysioNetWorks

MIMIC II Clinical Database

MIMIC III Clinical Database

Sociometrics Corporation

Sociometrics Social Science Electronic Data Library

Substance Abuse & Mental Health Services Administration

Children’s Mental Health Initiative

U.S. Department of Education

National Center for Education Statistics (public use sources only)

Early Childhood Longitudinal Study (ECLS) (public use sources only)

U.S. Department of Labor, Bureau of Labor Statistics

National Longitudinal Surveys

University of California, Irvine

UCI Machine Learning Repository

University of Michigan, Institute for Social Research

Panel Study of Income Dynamics

Health and Retirement Study

University of Minnesota, History Department

Integrated Public Use Microdata Samples

University of North Carolina at Chapel Hill, Carolina Population Center

The National Longitudinal Study of Adolescent Health – public use

University of Wisconsin-Madison, Center for Demography of Health and Aging

Wisconsin Longitudinal Study

U.S. Census Bureau

American Factfinder

 

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last update 3.9.2020